This has just been going on for way too long! I am in so much pain every day, mostly from spasms. I don’t know if I’d really call in unbelievable… but damn this hurts like hell and I can only take so many meds. Ugh!
Guess it’s time to give my neuro a call to hopefully get some IV steroids for some relief!
I received a phone call this morning letting me know that they want me back on November 23rd for the additional testing for insurance approval. It will also serve as part of my initial testing for the transplant.
Hubby decided that we should take the boys with us so that they can see Chicago before it gets too cold and before I go through my transplant. I’ll also get a chance to enjoy the sites with my boys.
So, we’ll be having a Happy Thanksgiving in Chicago!!!
I am not very good at waiting especially when my left arm is getting weaker and I’m having blurry vision. I need my next set of steroids but I think my neuro is going to be nervous that I continue to refuse Lemtrada.
I wish I had an evaluation date so that I can tell my neuro that I’m legitimately moving in the HSCT direction. She’s good with me being in the study, but she feels my RRMS is too aggressive to wait too long. She agreed to do monthly IV pulse steroids, which is something for now. I just wish I had that date for evaluation. I think it may put the mild Lemtrada pressure to rest.