Tag Archives: Multiple Sclerosis

Uncategorized

Thanksgiving Eve 2016

1 Comment

What a whirlwind of a day!

Everything went well and all my tests showed that I am ready for this transplant.  Dr. Burt was wonderful to see again. If my insurance gets with the program quickly then I may be starting mobilization before Christmas! That’s amazing!!! It makes it feel so much more real, the closer it gets.

I had the pleasure of meeting some wonderful people who are going through different parts of the transplant journey for dinner today. It was so inspiring to hear how great the results have been for those who had gone through he transplant. And it is great to have a support system that knows exactly how you feel and what you are going through. 


Thank you to my new stem cell familia! It was amazing meeting you all!

Disability, Pre-HSCT

Some people just don’t get it!!

3 Comments

I’m pissed! I’m getting my last steroid infusion, and I’m am sitting next to someone who says that everyone who can walk shouldn’t abuse the handicap spots? Seriously!? I have a handicap placard because I have Multiple Sclerosis. Some days I walk better than others. He said people who are able to walk don’t have a right to the spots and just use their grandfather’s placard 😡😡😡

Today, I’m supposed to be non-weight bearing on my left foot because of my laceration. I have a podiatry appt tomorrow morning, but screw it I walked in with my cane and was parked so far away the from handicap spots. And I didn’t complain!!!

I don’t like judging people, so who are you to judge me for my “invisible” disability? Which isn’t invisible really. Would you rather see me in a wheelchair and then I can have your approval for my handicap spot, even though I didn’t even use one today.

Or you know what?
I’ll trade my disease with you any day so then you can have my handicap spot.
Let’s see how you feel after walking in my shoes!

Thanks steroids for adding fuel to my flame. I get riled up on steroids sometimes, Ugh.
*rant over*

Uncategorized

Lets recap…

2 Comments

I initially did not meet the criteria for Dr. Burt’s Study at Northwestern because I hadn’t had a relapse in over 3 years. I re-submitted right after I had a relapse in May. Following that I quickly received the paperwork for the possibility of getting invited to come for an evaluation for the study.

I sent my initial email to Northwestern on June 22nd and was contacted within a day to send my Eval paperwork to them. However, I sat on it a bit because my father was going through eye surgery.

Once I knew that my dad was going to be ok, I sent over my paperwork on Sept 7th, I and received the news on Sept 13th, that they wanted me to come come for a formal evaluation! Once they received my medical records a few days later, they asked me to come the next week, Sept 20th and 21st!

I was accepted for treatment by Dr. Burt on a compassionate basis, as I had failed all of my medications and am still showing activity of my RRMS.