Calling NY tomorrow to see about my possible need for a vascular tune-up. I am a ball of nerves – I hope I can sleep tonight!
I have had return of some of my symptoms which affect my eyes, my fatigue, and my leg strength. Hoping to get those back in check following round two.
I just finished a 3 day 1000mg IV on Wed, Thurs, Friday. Now I am on an oral 60,40,20 taper for two weeks. I finally started feeling a bit better today.
I am in a wait and see kind of mode right now, since things have gotten slightly better since the steroids. I’m still bummed out, but know that there’s always hope since a second CCSVI treatment may be a possibility later.
I’d give anything to run again. Not that I was a runner… ever… but I was able to run once a long time ago. I also used to dance and workout regularly.
Now, I just want to be able to even speed walk without limping. I have good days and bad. My good days are awesome and I can jog a little. I even started participating in Zumba classes on Mondays, where I last about 15-20 minutes before my left leg starts to give out. But then I have bad days sometimes where I am limping after just a few minutes of walking. I am wondering if I should just keep pushing through these “bad” days and just keep walking (or limping) my way to running a 5K one day. I mean, you’d think that if I’d keep up with it that eventually my left leg would play nice and get strong enough to allow me to be as active as I want to be.
MS to 5K, or rather Couch to 5K, seems to be something that’s been running (pun totally intended) through my head lately.
I remember writing this on Facebook, May 10, 2011: “I have officially been gluten-free for 14 hours (had a danish for breakfast – bad me). I guess that’s good, right? It’s kinda like quitting smoking. I feel I should have one of those timer things, showing how long I have successfully gone gluten-free. I really hope this improves my well-being and health.”
It’s actually not too bad if you go slow, meal by meal. I am trying not to overwhelm myself with thinking about cooking gluten-free just yet. So far I am just going with the basics and buying a few gluten-free snacks to help between the meals. I actually found a fabulously yummy double chocolate brownie cookie which rocks!
My suggestion is to keep it simple at first… I bought gluten-free white bread for my sandwiches, and I am eating that while I am playing around with the baking part. Also, potatoes and rice are gluten free… add some chicken and veggies and you’ve got a simple gluten-free dinner. Fruity Pebbles is Gluten-free, so now I have another breakfast choice along with my yummy banana bread. I love salads – and all I am giving up are my croutons. I just finally decided to get focused and go step-by-step, meal-by-meal… I just packed my lunch for work, and got to put potato chips (yes, lots of chips gluten-free! Yummy!) and yogurt in my bag.
