On my “to-do” list for today was shaving my head! I want to get used to being totally bald before actually needing to pull tufts of hair off my head. I am super nervous but excited at the same time! This makes it feel so real!
#ms #RRMS #HSCT4MS #multiplesclerosis #chemo #chemotherapy #nochemonocure #bald #shaving
In preparation for losing my hair from my upcoming chemo, I decided to get my head shaved at Carlo’s Barbershop! I love this – I get to try an edgy new do!
#hsct #stemcells #curems #northwestern #drburt #ms #HSCT4MS #multiplesclerosis #chemo #chemotherapy #nochemonocure #transplant #Chicago
Many times, I go on these lovely breaks. Usually because life is either busy, or I’m too tired to do more than my day-to-day stuff. I’m awake late tonight because I am on my third day of prednisone taper following my 3 day steroid IV Tues-Thurs.
Steroids have always been good to me and have managed my MS relapses well. I was quite busy today (and somewhat productive) and am still not sleepy, thanks to the lovely steroids.
I need to blog to keep track of this next journey in my life – The one where I figure out what I will be doing next to manage my disease. It’s not an easy decision, but it is one that needs to be faced soon. I was on a very heavy MS drug for 3.5 years, and I still ended up with active lesions on my brain. Booooo.
Hopefully, I’ll blog with more pictures and happy times at home. Summer is upon us. We have an amazing backyard coming together nicely. I am very hopeful that we will have good times this summer!
