Ohio weather is all kinds of crazy! This morning I woke up to at least 6 wet inches of snow on the ground! I had PT and OT this morning and I thought I’d post an update video outside right after I got home.
Today, April 5th, is my one month discharge anniversary!
And look at what is happening now! My hair is growing back! It’s blondish “peach fuzz”! I can feel it when I brush my hand on my head and I can actually start to see it now!
Can you see it? Look right on top of my scalp against the black background. That’s crazy!!!
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So, to my loyal followers (and secret watchers 😉) thank you so much for all of you who have joined me through my journey and have continued to help me in bringing awareness to HSCT. Especially, it’s success in providing us with the 95-100% hope of permanent remission of RRMS (Relapse Remitting Multiple Sclerosis). To me, I call that a “cure” but if we use the words they use in the papers they have written (and are currently writing about the phase 3 multi-center trial that just ended in Novemer 2016) about this, they’ll call it “permanent” remission.
The things I am able to do now are truly life-changing. I had gotten so used to being sick with Multiple Sclerosis that I had forgotten what “normal” was and saw not much hope for my future. I feel as though I am seeing in HD with the brightness turned back up to normal. I didn’t realize how dark my vision had gotten. All I knew was that I hated driving at night and in the rain, and that I saw halos everywhere. Well, not anymore. It’s really unbelievable getting your sight back. And that’s just one of the amazing things that has improved for me after HSCT.
Feel feel to comment, if you have any thoughts or questions you’d like to share. If you’d like to speak on private look me up on Facebook or ask for my email 😉.