Category Archives: Pre-HSCT

I am really quite Sick

I am really sick. I saw my neuro today and we are continuing my disability until end of March where we will reassess and likely go long term.

I have to sleep on the damn couch because I don’t want to keep my hubby all night with my insane coughing fits.

And speaking of sleep we are working on trying to get me to have more restful sleep at night. So, I am gonna sign off and try to go to bed before midnight.

So, goodnight everyone!

Falling

I completely face-planted on my cement steps going out to my garage.  My left leg decided it would not go up the steps, and I bit it hard.  I am surprisingly sore everywhere and have a big lump on my left shin.

So far, Gilenya is working – I have not had any relapses since starting it, but the damage that was done from my prior flairs hasn’t gotten much better.

Welcome back SAHMhood

I officially have more time now to do my most important job, which is be a mom.

I have more time to cook, clean, play with my kids, take them places, take more pictures of them, volunteer at school, eBay things I don’t need or use anymore… AND I have more time to blog! – the list can go on and on. I am going to be a good stay-at-home mom again. And not only that, I intend on being a FUN mom. But although I have all this time, my body doesn’t play nice and tells me to reel it in. I have all these great ideas and intentions of fulfilling them, but I’m limited by… well, everything right now.

I just started my new medication, and it will be one week tomorrow. No real change as of yet, but some new symptoms coming on as a result of me trying to do too much. By the end of the day I am done, finshed, caput. I just want to try and catch up on life. And I will. I have to.

I remember this SAHM gig when my boys were little – and now I remember how much I loved it!