In preparation for losing my hair from my upcoming chemo, I decided to get my head shaved at Carlo’s Barbershop! I love this – I get to try an edgy new do!
#hsct #stemcells #curems #northwestern #drburt #ms #HSCT4MS #multiplesclerosis #chemo #chemotherapy #nochemonocure #transplant #Chicago
I’m pissed! I’m getting my last steroid infusion, and I’m am sitting next to someone who says that everyone who can walk shouldn’t abuse the handicap spots? Seriously!? I have a handicap placard because I have Multiple Sclerosis. Some days I walk better than others. He said people who are able to walk don’t have a right to the spots and just use their grandfather’s placard 😡😡😡
Today, I’m supposed to be non-weight bearing on my left foot because of my laceration. I have a podiatry appt tomorrow morning, but screw it I walked in with my cane and was parked so far away the from handicap spots. And I didn’t complain!!!
I don’t like judging people, so who are you to judge me for my “invisible” disability? Which isn’t invisible really. Would you rather see me in a wheelchair and then I can have your approval for my handicap spot, even though I didn’t even use one today.
Or you know what?
I’ll trade my disease with you any day so then you can have my handicap spot.
Let’s see how you feel after walking in my shoes!
Thanks steroids for adding fuel to my flame. I get riled up on steroids sometimes, Ugh.
*rant over*
Many times, I go on these lovely breaks. Usually because life is either busy, or I’m too tired to do more than my day-to-day stuff. I’m awake late tonight because I am on my third day of prednisone taper following my 3 day steroid IV Tues-Thurs.
Steroids have always been good to me and have managed my MS relapses well. I was quite busy today (and somewhat productive) and am still not sleepy, thanks to the lovely steroids.
I need to blog to keep track of this next journey in my life – The one where I figure out what I will be doing next to manage my disease. It’s not an easy decision, but it is one that needs to be faced soon. I was on a very heavy MS drug for 3.5 years, and I still ended up with active lesions on my brain. Booooo.
Hopefully, I’ll blog with more pictures and happy times at home. Summer is upon us. We have an amazing backyard coming together nicely. I am very hopeful that we will have good times this summer!
