Category Archives: Disability

Welcome back SAHMhood

I officially have more time now to do my most important job, which is be a mom.

I have more time to cook, clean, play with my kids, take them places, take more pictures of them, volunteer at school, eBay things I don’t need or use anymore… AND I have more time to blog! – the list can go on and on. I am going to be a good stay-at-home mom again. And not only that, I intend on being a FUN mom. But although I have all this time, my body doesn’t play nice and tells me to reel it in. I have all these great ideas and intentions of fulfilling them, but I’m limited by… well, everything right now.

I just started my new medication, and it will be one week tomorrow. No real change as of yet, but some new symptoms coming on as a result of me trying to do too much. By the end of the day I am done, finshed, caput. I just want to try and catch up on life. And I will. I have to.

I remember this SAHM gig when my boys were little – and now I remember how much I loved it!

MS rears it’s ugly head… Again!

Ay caramba!
Oi vey!
Good grief!
Jesus Maria!

I am so tired of feeling bad. I’m incredibly fatigued in general. My legs are heavy – it’s tough to move around as much as I would like to. I’m limping on the left if I move around a lot. My right eye is bothering me again. My left arm is dis-coordinated. I’m having a bit of trouble finding words. This is so incredibly frustrating!

Although today is better than yesterday and the day before and the day before, so it goes to show you how bad things have been since last Friday.

Please let Monday come soon, and pray that Gilenya works for me! I need some stability in my life and stability with this disease!

MRI Results show…

My radiology report is actually better than I thought. It says “minimal interval progression” with “new new small acute plaques in the subcortical white matter of the mesial right occipital lobe, right pre- SMA region, and in the splenium of the corpus callosum.”

I am off work for another week, so that things can calm down without the need for steroids.