All posts by MamaWise

Chicago bound again!

On my way to Chicago for pretesting, which will also serve as more info to send to my insurance company!  They asked for more information for the procedure approval.   I will also be seeing the amazing Dr. Burt!

If all goes well with insurance, I may be a starting officially in January or February.

 Hoping all goes well and as planned!

Daylight savings Perk!

It’s just before 11pm and I’m actually in bed ready to go to sleep!

I fought through my fatigue today and did not nap during the day. Also, since we moved our clocks backwards I am more tired now since my body still feels as though it’s almost midnight. This might be a possible reset of my internal sleep clock!  That would be awesome!

Fatigue all day… Insomnia all night…

That’s my MS…
msfatigue
Or at least a big part of it.

I never understood why this happens. It’s like I’m caught in a catch-22. If I am fatigued during the day, I end up taking a nap. These naps are not your typical “power naps” but rather 3-4 hour hits of deep sleep. Then later I am still fatigued and not rested. I tell myself that I want to go to sleep early (at least by midnight – yes, that is early in my turned-upside-down world) and hopefully start to change the cycle. I was always a nightowl but this is ridiculous. Three nights this week, I went to bed by 1am and still did not fall asleep until 3! Even when I take my Lunesta, it still doesn’t help.

Melatonin, however, seems to help a bit and when I took it last night I was able to fall asleep rather quickly – within an hour. So, I may have this be my go-to and see if it helps start to break the cycle.